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Toolkits for Children and Youth with Special Healthcare Needs


This toolkit provides an improved framework for engaging community leaders, clinicians, families, and Title V directors to assist children and youth with special health care needs (CSHCN). The materials included in this toolkit were collected by learning collaboratives that were funded by the Health Resources and Services Administration's Maternal and Child Health Bureau. Each collaborative identified and tested a number of tools that families and providers could use to support quality improvement within systems of care for CSHCNs. Examples of communication tools include the Family Newborn Hearing Screening Roadmap, care notebooks, and a pictorial description of seizures.

Accessibility: This website is generally screen reader accessible, but forms may be difficult to use, links may not be labeled, and images may not have alternate text. Diverse tools and resources are provided on this website. PDFs may not be fully accessible using a screen reader or Read Out Loud.

Primary Toolkit:

Maternal, Child, and Adolescent Health Toolkit

Secondary Toolkits:

Health and Disability Toolkit

Keyword Area:

Child, Disability, Health Promotion and Health Education, Quality Improvement, Workforce Competency


Institutional Author:

National Initiative for Children's Healthcare Quality





The NACCHO Toolbox is a repository of available resources to help local public health practitioners. Tools are produced by local, state, and federal agencies, as well as academic institutions and other stakeholders. The contents of this Toolbox are solely the responsibility of the authors and do not necessarily reflect any official recommendations of NACCHO. NACCHO makes no express or implied warranty with respect to the contents and disclaims liability for any damages arising from or connected to the use of the material in this Toolbox.